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Home > Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis > Organizations
Directory of Web Resources @ Expo Central : Organizations

Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis > Organizations : Categories

Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis > Organizations : Web Resources

Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis > Organizations : Web-Sites

1. Boomer Esiason Foundation [ Report dead link ]

A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.

http://www.esiason.org

2. Canadian Cystic Fibrosis Foundation [ Report dead link ]

Support and resources. Located in Toronto, Ontario.

http://www.cysticfibrosis.ca/

3. Chicago Cystic Fibrosis Awareness Day [ Report dead link ]

Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.

http://chicagocfawareness.org

4. Cochrane Cystic Fibrosis & Genetic Disorders Review Group [ Report dead link ]

An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.

http://www.liv.ac.uk/CFGD/

5. Concerned Friends of Cystic Fibrosis in Israel [ Report dead link ]

Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information.

http://www.cfcfisrael.org

6. Cystic Fibrosis Australia [ Report dead link ]

Information about the organization and its aims and objectives, CF facts, events, links and contact details.

http://www.cysticfibrosisaustralia.org.au/

7. Cystic Fibrosis Foundation [ Report dead link ]

Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.

http://www.cff.org/

8. Cystic Fibrosis Nurses: the International Specialist Group [ Report dead link ]

Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis.

http://www.cfnurses.net

9. Cystic Fibrosis Services [ Report dead link ]

A subsidiary of the Cystic Fibrosis Foundation in the United States, and a national pharmacy that offers minimal-cost medications to individuals with the disease.

http://www.cfservicespharmacy.com/

10. Cystic Fibrosis Trust [ Report dead link ]

National charity in the United Kingdom which funds research into the disease and provides information and support for patients and families.

http://www.cftrust.org.uk/

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Health > Conditions and Diseases > Genetic Disorders > Cystic Fibrosis > Organizations : Web Resources

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