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Health > Conditions and Diseases > Genetic Disorders > Organizations

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Home > Health > Conditions and Diseases > Genetic Disorders > Organizations
Directory of Web Resources @ Expo Central : Organizations

Health > Conditions and Diseases > Genetic Disorders > Organizations : Categories


Health > Conditions and Diseases > Genetic Disorders > Organizations : Web Resources



Health > Conditions and Diseases > Genetic Disorders > Organizations : Web-Sites


1. American Society of Genetic Disorders [ Report dead link ]
Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics.
http://www.ashg.org/genetics/ashg/ashgmenu.htm
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2. Australian MPS & Related Diseases Society [ Report dead link ]
Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.
http://www.mpssociety.org.au
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3. Dana's Angels Research Trust [ Report dead link ]
Information from this charitable organization on Niemann-Pick Type C disease and how individuals can contribute funds for research for this fatal childhood disease.
http://www.danasangels.org
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4. Genetic Interest Group [ Report dead link ]
Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
http://www.gig.org.uk
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5. Hereditary Disease Foundation [ Report dead link ]
Information about this non profit organization, news, newsletters, recommended reading and contact details.
http://www.hdfoundation.org
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6. Hereditary Hemorrhagic Telangiectasia Foundation International, Inc. [ Report dead link ]
Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general public.
http://www.hht.org/
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7. Lysosomal Diseases New Zealand [ Report dead link ]
Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
http://www.ldnz.org.nz
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8. The Ryan Foundation [ Report dead link ]
A non-profit, all-volunteer organization dedicated to supporting research for, and the families of, those suffering from Mucopolysaccharidosis, or MPS. Find disease info, articles and links.
http://www.ryanfoundation.org
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Health > Conditions and Diseases > Genetic Disorders > Organizations : Web Resources

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