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Health > Conditions and Diseases > Genetic Disorders > Sanfilippo Syndrome

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Home > Health > Conditions and Diseases > Genetic Disorders > Sanfilippo Syndrome
Directory of Web Resources @ Expo Central : Sanfilippo Syndrome

Health > Conditions and Diseases > Genetic Disorders > Sanfilippo Syndrome : Categories


Health > Conditions and Diseases > Genetic Disorders > Sanfilippo Syndrome : Web Resources



Health > Conditions and Diseases > Genetic Disorders > Sanfilippo Syndrome : Web-Sites


1. Ben's Dream [ Report dead link ]
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
http://www.bensdream.org
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2. Bennett Children's Foundation [ Report dead link ]
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
http://www.claritystudio.com/helpachild/
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3. Children's Medical Research Foundation [ Report dead link ]
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
http://www.curekirby.org/
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4. Frankiepants [ Report dead link ]
Personal site about a child with this disorder. Provides details about the condition.
http://www.frankiepants.com
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5. Julia's Hope--The Sanfilippo Syndrome Medical Research Foundation, Inc. [ Report dead link ]
A non-profit organization incorporated under the laws of the State of Nebraska to promote research toward a cure for Sanfilippo Syndrome and related disorders in children. Events, grants, and Julia's story.
http://www.juliashope.org/
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6. MPS III [ Report dead link ]
Information, including the causes, different forms, the inheritance and how the disorder progresses.
http://www.mpssociety.org/content/4039/MPS_III/
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7. Special Child: Disorder Zone Archives - Sanfilippo Syndrome [ Report dead link ]
Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
http://www.specialchild.com/archives/dz-034.html
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8. The Sanfilippo Children's Research Foundation [ Report dead link ]
Canadian based charitable group founded by the parents of Elisa Linton.
http://www.alifeforelisa.org/
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Health > Conditions and Diseases > Genetic Disorders > Sanfilippo Syndrome : Web Resources

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