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Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome : Categories
Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome : Web Resources
Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome : Web-Sites
| 1. Katie's Journey
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| Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations. |
| http://www.katiesjourney.50megs.com |
| 2. NORD: Shwachman Syndrome
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| Offers a general discussion, the synonyms and further resources. |
| http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Shwachman%20Syndrome |
| 4. Shwachman-Diamond America
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| Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research. |
| http://shwachmandiamondamerica.org |
| 6. Shwachman-Diamond Syndrome International
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| Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available. |
| http://www.shwachman-diamond.org/ |
| 7. The CaF Directory
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| A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom. |
| http://www.cafamily.org.uk/Direct/s24.html |
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Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome : Web Resources
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