Trichothiodystrophy Web Directory.


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Home > Health > Conditions and Diseases > Genetic Disorders > Trichothiodystrophy
Directory of Web Resources @ Expo Central : Trichothiodystrophy

Health > Conditions and Diseases > Genetic Disorders > Trichothiodystrophy : Categories

Health > Conditions and Diseases > Genetic Disorders > Trichothiodystrophy : Web Resources

Health > Conditions and Diseases > Genetic Disorders > Trichothiodystrophy : Web-Sites

1. A Parent's Account of Trichoththiodystrophy [ Report dead link ]

A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.

http://www.vp-it.com.au/sammyjoe/

2. About Andrea’s Disease [ Report dead link ]

Personal history of a girl in France. [English/French]

http://monsite.wanadoo.fr/andrea2610/

3. Atlas of Genetics and Cytogenetics in Oncology and Haematology [ Report dead link ]

Description and links.

http://www.infobiogen.fr/services/chromcancer/Kprones/TrichothioID10042.html

4. Foundation for Ichthyosis and Related Skin Types [ Report dead link ]

Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis.

http://www.scalyskin.org/content.cfm?ContentID=105&ColumnID=14

5. Hair Shaft Defects - Trichothiodystrophy [ Report dead link ]

Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.

http://www.keratin.com/ag/ag013.shtml

6. Jeans for Genes Day [ Report dead link ]

Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.

http://www.mariavamvakinou.com/wmview.php?ArtID=54

7. National Library of Medicine [ Report dead link ]

Trichothiodystrophy, the synonyms, a summary and a list of the major features.

http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=601675

8. Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani [ Report dead link ]

A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers.

http://www.orpha.net/data/patho/GB/uk-trichothiodystrophy.pdf

9. Yahoo! Groups : Trichothiodystrophy [ Report dead link ]

Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome.

http://health.groups.yahoo.com/group/Trichothiodystrophy/

10. Yahoo! Groups : Trichothiodystrophy Family Contact [ Report dead link ]

For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.

http://health.groups.yahoo.com/group/TTD-support/

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Health > Conditions and Diseases > Genetic Disorders > Trichothiodystrophy : Web Resources

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