Ehlers-Danlos Syndrome Web Directory.


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Home > Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Ehlers-Danlos Syndrome
Directory of Web Resources @ Expo Central : Ehlers-Danlos Syndrome

Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Ehlers-Danlos Syndrome : Categories

Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Ehlers-Danlos Syndrome : Web Resources

Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Ehlers-Danlos Syndrome : Web-Sites

1. "China Doll" Syndrome [ Report dead link ]

Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.

http://moondancer.150m.com/ehlers.html

2. American Massage Therapy Association - The Hypermobile Client/Therapist [ Report dead link ]

Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.

http://www.amtamassage.org/journal/olcott2.html

3. Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome [ Report dead link ]

Symptoms, diagnosis and treatment of the condition.

http://www.arthritis.org/conditions/diseasecenter/eds.asp

4. Arthritis Insight-EDS Tips for Surgery [ Report dead link ]

If you or a family member with EDS needs surgery, read this and share it with your doctor.

http://arthritisinsight.com/medical/surgery/eds.html

5. Coalition for Heritable Disorders of Connective Tissue [ Report dead link ]

Research organization for genetic connective tissue disorders.

http://www.chdct.org

6. Department of Pathology [ Report dead link ]

Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.

http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlos.php

7. Diagnose-Me: Treatments: Prolotherapy [ Report dead link ]

Some EDS patients have obtained excellent results with prolotherapy treatments.

http://www.diagnose-me.com/treat/T85233.html

8. EDS Living - a Journal [ Report dead link ]

Learn what it's like to live with EDS for this woman and her children by following her online journal.

http://edsliving.livejournal.com/

9. EDS Today [ Report dead link ]

The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.

http://www.edstoday.org/

10. Ehlers Danlos Foundation of New Zealand [ Report dead link ]

Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.

http://www.edfnz.org.nz

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Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Ehlers-Danlos Syndrome : Web Resources

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