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Health > Conditions and Diseases > Rare Disorders > Cystinosis

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Home > Health > Conditions and Diseases > Rare Disorders > Cystinosis
Directory of Web Resources @ Expo Central : Cystinosis

Health > Conditions and Diseases > Rare Disorders > Cystinosis : Categories


Health > Conditions and Diseases > Rare Disorders > Cystinosis : Web Resources



Health > Conditions and Diseases > Rare Disorders > Cystinosis : Web-Sites


1. Cornea and External Diseases - Cystinosis [ Report dead link ]
Features photographs of an affected eye, information on clinical features and treatment.
http://dro.hs.columbia.edu/cystinosis.htm
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2. Cystinosis Central [ Report dead link ]
Information about this disorder, conferences, data for physicians, updates and links.
http://medicine.ucsd.edu/cystinosis/INDEX.htm
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3. Cystinosis Clinical Resources [ Report dead link ]
Portal features annotated links for health professionals.
http://cchs-dl.slis.ua.edu/clinical/metabolism/inborn/lysosomalstorage/membranetransportdisorders/cystinosis.htm
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4. Cystinosis Foundation [ Report dead link ]
Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
http://www.cystinosisfoundation.org
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5. Cystinosis Research Foundation [ Report dead link ]
Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.
http://www.natalieswish.org
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6. Cystinosis Research Network [ Report dead link ]
Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
http://www.cystinosis.org
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7. EyeRounds.org: Cystinosis [ Report dead link ]
Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment.
http://webeye.ophth.uiowa.edu/eyeforum/cases/case4.htm
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8. The Cystinosis Foundation UK [ Report dead link ]
Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.
http://www.cystinosis.org.uk
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Health > Conditions and Diseases > Rare Disorders > Cystinosis : Web Resources


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