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Health > Support Groups > Conditions and Diseases > Genetic Disorders

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Home > Health > Support Groups > Conditions and Diseases > Genetic Disorders
Directory of Web Resources @ Expo Central : Genetic Disorders

Health > Support Groups > Conditions and Diseases > Genetic Disorders : Categories


Health > Support Groups > Conditions and Diseases > Genetic Disorders : Web Resources



Health > Support Groups > Conditions and Diseases > Genetic Disorders : Web-Sites


1. Alliance of Genetic Support Groups [ Report dead link ]
National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
http://www.geneticalliance.org/
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2. Chromosome 22 Central [ Report dead link ]
Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations.
http://www.nt.net/~a815/chr22.htm
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3. Chromosome Deletion Outreach, Inc. (CDO) [ Report dead link ]
Non-profit voluntary support group for families affected by rare chromosome disorders.
http://www.chromodisorder.org/
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4. Chromosome Help-Station [ Report dead link ]
Information on rare chromosomal disorders. Support and advice for families.
http://www.chromosomehelpstation.com/
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5. Cornelia de Lange Syndrome (CdLS) Foundation Outreach [ Report dead link ]
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
http://www.cdlsusa.org
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6. Distal Trisomy 10q Families [ Report dead link ]
Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
http://trisomy10q.darylanderson.com
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7. Forum for Patients with Myotonic Dystrophy 2 [ Report dead link ]
A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
http://groups.yahoo.com/group/MyotonicDystrophy2
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8. Ideas [ Report dead link ]
A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
http://idic15.org/
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9. Lafora body disease research talk [ Report dead link ]
This is a discussion group about lafora body disease.
http://groups.msn.com/laforabodydiseaseresearchtalk
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10. Online Genetic Syndrome Support Groups [ Report dead link ]
Sites are listed alphabetically by disease/condition.
http://members.aol.com/dnacutter/sgroup.htm
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Health > Support Groups > Conditions and Diseases > Genetic Disorders : Web Resources


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